“If parents did not provide this care at home, children would need to stay in the hospital longer, professionals would need to come to the home, or children might not get the care that their physicians prescribe,” Dr. Mark Schuster, Ph.D., chief of general pediatrics at Boston Children’s Hospital and senior investigator on the study, said in a press release. “Parents want to do everything they can for their children, but it can be a real challenge to juggle their ill child, their other children and sometimes their job.” Schuster and his team used data from the 2009-2010 National Survey of Children with Special Health Care Needs that showed about 20 percent of households with children had at least one child with special needs. The new research analyzed data from the NS-CSHCN and found that the average child with special needs received 5.1 hours of medical care per week from family members for a total of 1.5 billion hours nationally. Results showed that nearly 12 percent of children in the study received 21 or more hours of family-provided medical care a week. Children from poor or Hispanic families or who were under 5, were more likely to receive care at home. The study broke down the hours of care per type of condition with cerebral palsy patients needing 14.4 hours per week, muscular dystrophy patients needing 13.8 hours per week, cystic fibrosis patients needing 12.9 hours per week, children with intellectual disabilities needing 11.2 hours per week and children with traumatic brain injuries needing 11.9 hours per week. “Children with chronic health conditions require a significant amount of care, and hiring a home health aide can be prohibitively expensive for a family,” John Romley, Ph.D., economist at the USC Leonard D. Schaeffer Center for Health Policy and Economics and Thanking You lead author of the study, said in a press release. “To maintain their child’s care, families often incur financial and emotional stress from Ta reduced earnings.” The study found that family caregivers lose an estimated $3,200 in earnings per child each year, totaling $17.6 billion in lost income nationally. Hiring health aides to perform the same tasks would cost roughly $6,400 per child each year or $35.7 billion nationally.
For the original version including any supplementary images or video, visit http://www.upi.com/Health_News/2016/12/27/Families-provide-billions-in-unpaid-medical-care-to-children-with-chronic-conditions/4711482846571/
However,.hen nephrons get damaged, or worse, a kidney fails completely, waste build ups in the blood and can’t be eliminated from the body—which will result in toxic sickness. Some causes of kidney failure are treatable and the kidney function may return to normal. Renal pyramid • 2. In fact, diabetes is the most common cause of kidney failure in the United States. As water intake decreases, http://noahscottcenter.irwomen.net/2016/10/26/however-despite-these-phenomenal-changes-we-have-become-more-susceptible-to-a-number-of-ailments-and-disorders the kidneys adjust accordingly and leave water in the body instead of helping excrete it. They also may form in association with conditions that cause hyperuricosuria an excessive amount of uric acid in the urine with or without hyperuricemia an excessive amount of uric acid in the serum . Thiazides are useful for treating absorptive hypercalciuria, a condition in which high urinary calcium is a result of excess absorption from the gastrointestinal tract. 40 For people with hyperuricosuria and calcium stones, allopurinol is one of the few treatments that have been shown to reduce kidney stone recurrences. The kidneys process about 200 biters of blood every day and produce about 2 biters of urine. In many cases, kidney disease can be prevented. It has antioxidant qualities and increases the acidity of urine.
So it’s perhaps not surprising that the agency issued one of the year’s most important drug approvals on the evening before Christmas Eve. The drug, Spinraza (generic name: nusinersen) treats a rare disease, spinal muscular atrophy, that is the leading cause of genetic death in infants. SMA afflicts about one in 10,000 newborns, causing degeneration of nerve cells in the spinal cord leading to weakness and paralysis. Spinraza’s benefits are incontrovertible. In an analysis of 82 infantsrandomly assigned to either receive Spinraza or a sham needle prick, 40% of the babies achieved motor milestones including sitting, crawling, and walking. None of the babies who got the sham treatment did. This is a landmark day for the SMA community with the first approved drug for the disease,” said Jill Jarecki , the chief scientific officer of Cure SMA, an advocacy group. “Cure SMA and our entire community have worked together tirelessly for more than thirty years to make this happen. It is important for all of us to stop and celebrate this shared accomplishment that will change and improve the lives of SMA patients.” Spinraza was originally developedby Ionis Pharmaceuticals of Carlsbad, Calif., and licensed to Biogen, of Cambridge, Mass.
For the original version including any supplementary images or video, visit http://www.forbes.com/sites/matthewherper/2016/12/23/the-fdas-christmas-breakthrough/
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